Community Resource List
The following are resources that may be helpful to your family as you look for information, programs, or services to meet you and your child’s unique needs.
Advocacy and Support
Offers information on the Americans with Disabilities Act and related disability laws.
Federal government website with detailed information about the ADA.
Federal government website with detailed information about the ADA.
The Arc of Story County has been a leader in advocating on behalf of individuals with disabilities in Ames and Story County. Programs include Active lifestyles, Children at Home funding options for equipment or services, Respite funding options, Faith Fellowship and more.
Supports quality respite and crisis care programs across the United States.
A leading autism science and advocacy organization.
Free patient blogs to connect friends and family during a health challenge.
Personal, protected blogs to keep family and friends informed during health complications.
University of Iowa offers a wide range of services and programs for individuals with disabilities.
CDC works to protect America from health, safety and security threats, both foreign and in the U.S.
Connect with individuals whose family members have a disability with this family directory.
Connects veteran parents with families who are just starting to raise a child with special needs.
Helps families navigate supports and services in Iowa for their children and for themselves.
Locate support groups and advocacy information specific to a child’s genetic disorder.
Down’s Syndrome awareness, educational, and program centers.
A listing and contact information of Food, Shelter/Housing, Health Care, General Assistance, Legal/Advocacy, and Clothing services available in the Des Moines metro area.
Seeks to increase participation of Iowans with disabilities in political and civic opportunities and includes the Iowa Governor’s Developmental Disabilities Council.
The Sibling Support Project is a national effort dedicated to the life-long concerns of brothers and sisters of people who have special health, developmental, or mental health concerns.
Provides information about being an effective advocate for individuals with disabilities in Iowa.
Iowa’s free hotline for confidential access to health and human services resources.
24/7 hotline that offers support for anyone dealing with stressful situations.
Assists in arranging the best education for your child in the Iowa school system.
Protects basic rights, freedoms, and opportunities, especially for underrepresented Iowans.
Facilitates programs that help individuals live stable, healthy lives, including Medicaid, childcare, food assistance, and mental health programs.
Promotes and protects the health of Iowans through partnerships and education.
Iowa State University’s program to educate children and families about healthy lifestyles.
Federal agency that advises government officials about the needs of individuals with disabilities.
Promotes independent living and equal rights of people with disabilities.
Dedicated to helping people with rare diseases and disorders.
Helps locate information and services in Polk County related to an individual’s specific situation.
Describes the transition into and out of hospitals, rehab units, and home care agency services.
Focuses on “parents helping parents” to enhance the quality of life of children with disabilities.
Protects equal voting rights and accessibility for individuals with disabilities.
A safe and inexpensive house for families to stay at when their children are being treated.
Describes the Voting Rights Act and state requirements for accessible voting.
Provides services that enable people to live in the community of their choice through Iowa DHS.
Aims to eliminate barriers for individuals with disabilities across the world.
Education and Work
Association on Higher Education and Disability, focuses on the transition to college.
Engages and inspires parents and schools to help children develop and learn successfully
Helps youth with Acquired Brain Injury with school reintegration and behavior intervention.
Federally funded child development program for children of all abilities, 0-5 years old.
Partners with public and private Iowa schools to improve the learning of youth in Iowa.
Assists in arranging the best special education for your child in the Iowa school system.
Enhances quality of life for all individuals with learning disabilities and their families.
Provides individualized, developmentally appropriate instruction through groups and tutoring.
An office of the U.S. Department of Education that ensures equal access to quality education.
Run by Heartland AEA, promotes positive partnerships between parents and educators.
Run by Heartland AEA, a designated individual can help mediate conflicts related to education.
A guide created by the Department of Education to explain the rights of students with disabilities.
Two-year program with a campus experience for students with multiple disabilities.
Entering the Workforce
Federal government website for comprehensive information on disability services nationwide.
Assists individuals with disabilities in achieving employment, financial, and independence goals.
Expert confidential guidance on disability employment issues from the U.S. Department of Labor.
Focuses on enabling people with disabilities to enter the workforce successfully.
Ticket to Work program helps people with disabilities prepare and enter the workforce.
Official site for Social Security providing information as it relates to children, disabilities, etc.
Lists resources on disaster preparedness and emergencies, including proper ADA procedures.
Serves those in need post-disaster and offers classes on CPR, first aid, and AED.
Resources on emergency preparedness, response, and recovery for individuals of all abilities.
Provides education on safety at work, home, and on the road.
Describes Polk County’s methods of emergency preparedness, response, and recovery.
FEMA’s campaign to educate/empower Americans to prepare for and respond to emergencies.
Provides objective information about assistive technology products and rehabilitation equipment.
Specializes in mobility equipment and located in Iowa.
Offers free equipment, including wheelchairs, bathroom accessories & communication devices.
Provides home medical equipment out of Urbandale and Creston.
Loans medical equipment, has a demonstration center, and rents out assistive technology.
Helps individuals choose and obtain the proper home medical equipment.
Offers assistive technology and medical equipment from eight locations in Iowa.
Provides training, resources, and services related to home modification.
Offers loans to Iowans who need to pay for assistive technology or vehicle/home modifications.
Large directory of locations throughout Iowa that help meet adaptive equipment needs.
Provides home medical equipment services, including training and equipment maintenance.
Helps Iowans locate and obtain assistive technology to improve their quality of life.
Offers medical equipment and supplies, staffed by respiratory therapists for assistance.
Booklet describing assistive technology options for people with hidden disabilities in Iowa.
BFull-service home infusion and medical equipment services provider, run by University of Iowa.
Describes Medicare, Medicaid, and Children’s Health Insurance programs in detail.
Iowa Medicaid recipients may receive an exception to Iowa DHS policies if proven beneficial.
Helps Medicaid recipients get insurance or keep current insurance by reimbursing premium cost.
Medicaid program is managed by the Iowa DHS; search DHS website for more information.
Helps pay medical bills for children with special needs, must fall under specific income level.
Program eligibility based on income and medical bills; search DHS website for more information.
Waivers include brain injury, handicapped, intellectual disability, and children’s mental health. They assist with costs, giving families freedom and choices. Search the web for more details.
Application for Medical Assistance, Food Assistance (FA), Family Investment (FIP), and Child Care Assistance (CCA).
Children with chronic kidney disease may qualify.
Mothers and Children Program (MAC)
Medicaid is available to pregnant mothers and to children if criteria are met.
Run by Iowa DHS, helps pay for child care if parent or caretaker meets criteria.
Run by Iowa DHS, provides time-limited, as-needed financial assistance for a child’s services.
State-funded program, may help pay for in-home health care services if criteria are met.
Other Financial Assistance
Government benefit program, provides discounts on telephone services if criteria are met.
Run by Iowa DHS, provides access to healthy food through programs like EBT cards or WIC.
Helps people in need find programs to assist with medication and health care costs.
Federal program that provides money to meet basic needs for food, clothing, and shelter.
Serves children in Iowa with chronic conditions with care coordination and affordable ideas.
Coordinated by University of Iowa, free dental care for children with disabilities that meet criteria.
Free services for children under 3 years old with a disability or development delays.
Early Hearing Detection and Intervention program, identifies/supports children with hearing loss.
Early Periodic Screening, Diagnosis, and Treatment for kids, free for children using Medicaid.
Affordable health/dental insurance for uninsured children that aren’t on Medicaid and fit criteria.
Promotes healthy families through multiple programs.
To create the conditions for all people to live healthy lives by engaging residents, reducing health disparities and attending to the needs of our most vulnerable families.
Located in Cedar Rapids, 24/7 skilled nursing care for all ages.
Located in Oskalooska, provides 24/7 pediatric nursing services to Southeastern Iowa.
Lists all providers in Iowa that have been certified by IAHC, can search for a provider near you.
Lists all providers in Iowa that have been certified by IAHC, can search for a provider near you.
Serves individuals within 50 miles of Des Moines, provides specialized pediatric care in homes.
Offers an agency locator which will list most of the home care providers in your area.
Locations across Iowa, 24/7 skilled nursing services and in-home therapies.
Affiliated with University of Iowa, trained in IV therapy, pediatric nutrition, oxygen, and more.
In-home health care and private-duty nursing for children with serious medical conditions.
Advocates for nonprofit home health providers that care for all people regardless of condition.
Provides services from home visits to transportation; community resource directory on website.
Booklet created by the University of Iowa Hospitals and Clinics, published online
Created by Iowa Department of Public Health, studies needs of individuals with brain injuries.
Run through local school districts; provide support for students with acquired brain injuries.
Educates the public about strokes and advocates for individuals who have experienced strokes.
Focuses on brain injury education, advocacy, and support; local support groups in Iowa.
Largest nationwide brain injury advocacy organization.
Offers email support groups, chat rooms, and resources related to brain injury.
Safe chat room for people living with brain injury to meet for support and information.
Lists and categorizes many other websites related to brain injury.
Helps youth with brain injury understand assessments, return to school, and work on behaviors.
Provides practical and relevant information about brain injury.
Resources, forums, and links related to neuropsychology and brain injury.
Information about brain injury, outside resources, and stories from survivors and caregivers.
Education, advocacy, research, and support for brain injury survivors and their families.
Run by Disability Rights Iowa, informs people of their civil rights related to traumatic brain injury.
Online book by a clinical neuropsychologist for survivors of brain injury and their caregivers.
Published online by Mayo Clinic, helps employers understand brain injury.
Published online by Mayo Clinic, helps families understand brain injury.
Answers questions individuals may have if a loved one is in a coma.
Professional organization with current research articles on their website.
National organization on limb loss; website includes a Limb Loss Resource Center.
Place for people to connect and discuss topics related to the life of amputees.
Provides prosthetic care for those who cannot afford; website has lists of other helpful resources.
Spinal Cord Injury
Organization for medical professionals; offers learning tools and advocacy information.
Peer support and discussion forums for those affected by spinal cord injuries.
Foundation for people with spinal cord injury; extensive online Paralysis Resource Center.
Offers potential solutions to those with neural muscular disabilities and their families.
Free legal help with civil law problems for eligible low-income Iowans.
Provides consumer legal information on many topics, including guardianships in Iowa.
Education and professional development for guardians.
Offers information on Maternal and Child Health, Conflict Management Institute, and more.
Protects consumers by regulating insurance in Iowa; may contact them to submit complaints.
Fellowship of men and women seeking to stay sober and help others achieve sobriety.
Information about Alzheimer’s, current research, being a caregiver, message boards, and more.
Run through Iowa DHS, promotes high quality disability related services and supports.
Focuses on children with emotional, behavioral, or mental health needs and their families.
Behavioral health services, including mental health services and peer supports.
Address the full spectrum of mental and substance use conditions, hosts local support groups.
Promotes mental health, wellness education, and advocacy; many resources listed on website.
Vision is that every addict can find a new way of life; website has resources and support groups.
Program for people who want freedom from substance abuse; website lists outside resources.
Run by Iowa Department of Public Health; lists treatment programs and resources in Iowa.
An adapted sports camp for youth with lower limb disability at University of Northern Iowa.
The city maintains a variety of parks and facilities for public use. Visit the website for a listing of recreational opportunities such as; open gym, ice skating, swimming, and youth classes and facility hours of operation.
Animal-assisted activities, primarily with horses, for individuals with disabilities.
Provides opportunities for one-to-one friendships in high schools, colleges, and via email.
The Boy Scouts of America provides a program for young people that builds character, trains them in the responsibilities of participating citizenship, and develops personal fitness.
Year-round respite care and recreational facility for individuals with disabilities in Monticello, IA.
Adaptive sports gym in West Des Moines designed fro children with disabilities or challenges.
The site provides recreational and leisure activity ideas for children and their families in the Greater Des Moines area.
Resident and day summer camps in Des Moines for individuals of all ages with any disability.
Girl Scouting builds girls of courage, confidence and character who make the world a better place.
Empowers individuals with intellectual disabilities through sports training and competition.
Provides opportunities for people with disabilities to play sports throughout eastern Iowa.
Hosts art workshop and classes that are accessible to people of all abilities.
The Y ensures that everyone has the opportunity to become healthier, more confident, connected and secure.
The library connects you to the world of ideas through a variety of programming for infants to teens, families and adults. All programs are free. Get calendar of events online.
One-stop-shop for disability resources; provides a broad range of information and resources.
Run by University of Iowa; provides materials on disability-related topics from books to DVDs.
Provides easy access to up-to-date publications and materials for people with disabilities
The library connects you to the world of ideas through a variety of programming for infants to teens, families and adults. All programs are free. Get calendar of events on line.
For Iowans with disabilities and their families; information, referral, equipment & advocacy.
Promotes health and development of infants and toddlers with practical tools and information.
Search engine for resources on the web and research database called REHABDATA.
This comprehensive guide will provide information on organizations that help people in need. The guide includes food pantries, housing options, transportation services, services and supports.
Provides leadership on global health by setting standards and describing current research
Inpatient and outpatient therapy services, including physical, occupational, and speech therapy
Located in West Burlington, IA; provides PT, PT, and speech; emphasizes family involvement.
Located in Washington, IA; provides orthopedic and post-surgery rehab & occupational therapy.
Mercy: Pediatric Rehab
Specialized pediatric rehab at Mercy Riverside in Des Moines and through homecare services.
Locations throughout Iowa; provide PT, OT, speech, aquatics, dysphagia therapy and more.
Located in Cedar Rapids at St. Luke’s Hospital; one of the largest pediatric therapy centers in IA.